Ok so I have not posted on here in like forever. My good friend Shannon Primer inspired me to get writing again.
So let us talk about Akshay's 2nd grade year. WOW!!! Awesome and unbelievable are some of the words I use. My kiddo who ate the end of the 2008-2009 school year had two, yes TWO goals out of 28 completed. The end of the 2009-2010 school year he had 26 out of 33. 26 OUT OF 33!!! He can read now, does math and can write his name legibly!!! He plays tag with a bunch of kids and the girls think he's cute. My IEP went better than expected with the district not fighting me on services and goals. I mean WOW.
This is why I have to tread lightly. As in always the case things go well and suddenly something decides to screw with the delicate balance. I am already getting an inkling that something is on its way. Let's take the 1:1 aide situation. I found out two weeks ago that Andy wasn't going to be with Akshay, naturally I'm a little unnerved. Then I get an email "yes Andy will be with Akshay but maybe not in the fall." I really need to stop helping train the aides. Every time I get a good one they snatch them away.
I'm worried about summer and the terrible word...regression. We're so lucky to have CSA during the summer, but will it be enough. So again tread lightly.
Recovery..it's what this is all about. Sometime in Akshay I get clear glimpses of what recovery will look like. I feel like we are so close but we are missing something to finish the job. I know I'm not alone in that feeling, many of the parents I know in this battle feel the same way. We're all so close but yet so far away.
That's all for now. I am going to try and post often and hope to hear from you all soon. Fight On!
